Using Electronic Health Records to Identify Cohorts for Drug-Induced Thrombocytopenia, Neutropenia and Liver Injury

2011 CTSA Annual Informatics Meeting October 12-13, 2011 Natcher Conference Center NIH Campus Podium Presentations CTSA Informatics Annual Meeting # Title Presenter Institution 1 Novel Methods for Measuring Impact of Informatics Tools Paul Harris Vanderbilt University 2 Patterns of Search: Analyzing and Modeling User Behavior in a Scientific Professional Network (WorkWeb) Chunhua Weng Columbia University 3 PROMPTR: Progress Reporting and Outcomes Measurement to Promote Translational Research Elizabeth Wood Weill Cornell Medical College 4 A Logic Model and Metrics for Evaluation of the Biomedical Informatics Component of the Arkansas Translational Research Institute William Hogan University of Arkansas 5 Integrating Electronic Health Record (EHR) and Community Information System (CIS) Data to Support Population Research and Practice Brian Dixon Indiana University 6 WICER: Building a Community-Centered Translational Research Infrastructure with Electronic Data Adam Wilcox Columbia University 7 The Analytic Information Warehouse: a Platform Supporting Comparative Studies of EHR Data Andrew Post Emory University 8 Explorys A New Paradigm in Integrated Data Repositories: Overview and Case Study David Kaelber Case Western Reserve University 9 TruData: Computing Truth Through RealWorld Transactions Curtis Cole Weill Cornell Medical College 10 Plumbing and Politics: A Governance and Operating Model for the Northwestern Medical Enterprise Data Warehouse Andrew Winter Northwestern University 11 A retrospective research model enabled by an open-source integrated research data repository Greg Hruby Columbia University 12 Harvest: An Open-‐Source Biomedical Data Integration and Discovery Platform Jeffrey Pennington Children’s Hospital Of Philadelphia 13 Using Electronic Health Records to Identify Cohorts for Drug-Induced Thrombocytopenia, Neutropenia and Liver Injury Jyotishman Pathak Mayo Clinic Demonstrations CTSA Informatics Annual Meeting # Title Presenter Institution 14 TimeFlow iPads in clinical research: timemotion and secure offline data collection Warren Kibbe Northwestern University 15 eagle-i: development and expansion of a scientific resource discovery network Doug MacFadden Harvard University 16 The ITHS Central Database: A Customer Relationship Management System for CTSAs Jim Piper University of Washington 17 The Human Studies Database (HSDB) Project Ida Sim University of California, San Francisco 18 Electronic Capture and Management of Informed Consent for Research Aziz Boxwala University of California, San Diego 19 Harvard Catalyst Profiles: Research networking, bibliometric analysis, and social network analysis based on linked open data and VIVO ontology Griffin Weber Harvard University 20 Demonstration of the i2b2-based Health Outcome Monitoring and Evaluation (HOME) Cell William Adams Boston University 21 G-CODE: Enabling systems medicine through innovative informatics Subha Madhavan Georgetown University 22 Integrating Research Networking Tools with Broader Social Networking Products to Create an Improved Environment for Accelerating Science Eric Meeks University of California, San Francisco 23 A Research Participant Tracking System that Supports Business Process through System Integration Robert Gehrke Mayo Clinic 24 Enhancing Collaborative Science Using Shared Query Tagging/Searching Plugins for the i2b2 Web Client: The WO_Apps Rajani Sadasivam University of Massachusetts 25 HUBzero Frameworks for Institutional and Project Scale Information Management William Barnett Indiana University 26 Building Robust Research Capabilities through Integrating Clinical Study, Patient, and Biospecimen Data Repositories Leslie McIntosh Washington University Poster Presentations CTSA Informatics Annual Meeting # Title Presenter Institution 27 VIVO: A Tool for Collaboration and Research Discovery Kristi Holmes Washington University 28 Case Studies and Meaningful Research Use of the Shared Health Research Informatics Network (SHRINE) Andrew McMurry Harvard University 29 Omics Data Standards Working Group: update on activities Jessie Tenenbaum Duke University 30 DIRECT2Experts – Distributed Interoperable Research Experts Collaboration Tool Griffin Weber Harvard University 31 Use-case Driven Development of a Federated Research Data Warehouse Monika Ahuja University of Iowa 32 Cross CTSA Institutions Cohort Discovery Approach Adil Alaoui Georgetown University 33 Exploration of Two Approaches for Determination of Recipients of Targeted Communication in a Scientific Collaborative Network (WorkWeb) Suzanne Bakken Columbia University 34 Improving Robustness and Automating Workflow of the Resource Discovery System with iBIOFind Michael Baldonieri University of Pittsburgh 35 An Informatics Course Based on the CTSA Informatics Competencies Eta Berner University of Alabama at Birmingham 36 Finding Collaborators: Towards Interactive Tools for Research Social Networks Charles Borromeo University of Pittsburgh 37 REDCap Goes to the Rodeo Linda Carlin University of Colorado Denver 38 TIES‐SPIRiT Collaborative Tissue Network Girish Chavan University of Pittsburgh 39 A System Architecture for Federating Standardized Clinical Brain Images Across Hospitals Ann Chervenak University of Southern California 40 Ranking CTSA Labs: Metrics for Biomedical Resource Identification, Utilization and Impact Assessment Jeff Cromwell University of Pittsburgh 41 Modeling Electronic Tools to Improve Source Document Verification Audits Stephany Duda Vanderbilt University 42 Engaging campus biobanks in the selection of an enterprise-wide biobanking informatics platform Helena Ellis Duke University 43 Secondary Data Reuse in Comparative Effectiveness Research: A Model Framework and Proof of Concept Dan Fort Columbia University 44 Maintaining Cohort Discovery coded content with the LE Access Portal (LEAP) Davera Gabriel University of California, Davis 45 i2b2 at the University of Michigan: Cohort discovery and beyond . . . Stephen Gendler University of Michigan Poster Presentations (Cont.) CTSA Informatics Annual Meeting # Title Presenter Institution 46 Withdrawn 47 Identifying duplicate clinical records using administrative and clinical data Susan Guerrero University of Texas, Houston 48 Achieving Clinical Research Management System (CRMS) Adoption Through Coordinated Changes to Clinical Research and Billing Practice Diana Gumas Johns Hopkins University 49 Withdrawn 50 An Open-source Informatics Management System and Community for the National Children's Study William Hogan University of Arkansas 51 Identifying and Assessing the Impact of Biomedical Research Kristi Holmes Washington University 52 Informatics Education: Partnerships and Opportunities Kristi Holmes Washington University 53 Informatics and Community Engagement: Collaboration Efforts at UIC Denise Hynes University of Illinois at Chicago 54 eNOTIS an open source participant tracking system used to enhance patient safety and compliance and Registrar, an integrated registry management system Warren Kibbe Northwestern University 55 NCS Navigator MDES Warehouse a pragmatic approach to building a semantic data warehouse from semi-parsable, mandated data elements Warren Kibbe Northwestern University 56 FacultyConnect connecting faculty with award opportunities and tracking interest, follow-through, and outcomes Warren Kibbe Northwestern University 57 LatticeGrid an open source tool assessing collaboration patterns and tracking interest, follow-through, and outcomes Warren Kibbe Northwestern University 58 A Paradigm Shift: Electronic Health Records Data in Clinical Practice Ketan Mane University of North Carolina 59 Towards Integrated Solutions for Virtual Drug Screening Jarek Meller University of Cincinnati 60 Central Indiana Innovation Network (CI-Net) Michael Murray Indiana University 61 ResearchIQ: Semantic Search for the Research Community Philip Payne Ohio State University 62 StudySearch: A Tool For Connecting Potential Participants with Locally Recruiting Studies Philip Payne Ohio State University 63 High-throughput Informatics Infrastructure for Biorepositories Susanne Ragg Indiana University 64 Large-scale Analytics for In Silico Study of Brain Tumors using High-resolution Digital Pathology Joel Saltz Emory University Poster Presentations (Cont.) CTSA Informatics Annual Meeting # Title Presenter Institution 65 Integration of drug classification information with EMR data in the utCRIS Data Warehouse for adverse drug event association analysis Richard Scheuermann University of Texas Southwestern 66 DV Docs: Generating CVs and NIH Biosketches from VIVO Data Linda Schmandt University of Pittsburgh 67 Enabling Research Through Technology: Leveraging Enterprise Data Stores in Support of Cohort Generation and Facilitated Subject Recruitment Howard Shang Duke University 68 Integration of Clinical Data for an ICU Registry John Sharp Case Western Reserve University 69 A Collaborative Support Model for InvestigatorInitiated Data Management Denise Snyder Duke University 70 A Web-based Tool for Cataloging Primary Care Electronic Medical Record Federated Data: FInDiT Kari Stephens University of Washington 71 Warehousing of Trials Data for Data Submission and Reporting Shariq Tariq University of Arkansas 72 Budgeting Issues and Solutions for a Clinical Research in an Academic Health Center Umit Topaloglu University of Arkansas 73 Towards and Oncology Database (ONCOD), a Case Study Using Data Warehousing Technology Xiaoming Wang University of Chicago 74 A Machine Learning Based Approach for Retrieval and Organization of Translational Research Articles Firas Wehbe Vanderbilt University 75 A Method for Standardized Patient Reported Outcome Data Collection at the Point of Care James Willig University of Alabama at Birmingham 76 Using a MeSH‐based Index to Demonstrate the Multidisciplinary Propensity of KL2 Scholars GQ Zhang Case Western Reserve University Abstract: Novel Methods for Measuring Impact of Informatics Tools Novel Methods for Measuring Impact of Informatics Tools 1) Description of the project, best practice, activity, system to be presented; Evaluation is essential for measuring the impact for any CTSA program, system or tool. The null hypothesis for any new initiative should be to assume no impact until proven otherwise. Adding ‘measure as you go’ logging and metrics into informatics tools can lead to real-time evaluation of impact. This presentation will focus on methods we have developed across multiple informatics platforms to measure usage and overall impact for informatics tools and systems. Examples will be provided from our local researcher portal (StarBRITE), a CTSA-wide national recruitment registry (ResearchMatch), and a data management platform serving over 28,000 end-users across 6 continents (REDCap). See Figure 1 for examples. Figure 1: Example Dashboards for Measuring Impact of Informatics Tools 2) Why it is important to be presented at the 2011 IKFC meeting Best practice evaluation concepts will be relevant to any CTSA informatics team. Example methods will be applicable to a wide range of informatics tool classes. 3) Impact on the CTSA Consortium Strategic Goals Evaluation of programs and interventions is vital for accomplishing the mission of all CTSA Consortium Strategic Goal Groups. Abstract 1